Signs of joint laxity, sometimes called “double-jointed” include being able to: So as a parent, how do you know when to acknowledge your child’s pain as being part of normal childhood “growing pains” and when to be more concerned? With EDS-HT, the first place to look is at the joints, which in childhood will be loose. However, with early recognition, interventions such as physical therapy can improve the stability of joints and stop the progression of pain-possibly before it even starts. It is important to know that symptoms in EDS-HT are highly variable and not everyone will experience pain and/or functional limitations to the same degree-if at all. It can be tricky to diagnose in older patients because the flexibility can decline over time. What can look like a mild problem in children can accelerate in adolescents and teens, becoming a condition with debilitating pain. While these examples are three separate but typical scenarios for someone with EDS-HT, they can actually describe the progression of one person’s EDS-HT symptoms over time. Progression of Ehler-Danlos Hypermobility Type She remembers that in grade school she could “freak out” her friends by the way she could bend her fingers backward. However, she does not think her joints are flexible, which is part of the diagnosis. A 40-year-old woman with fibromyalgia, chronic fatigue syndrome, and chronic migraines researches her symptoms on the internet and realizes that many of her problems are frequently seen in EDS-HT.She also begins to feel dizzy and “blacks out” with standing. Headaches become a daily occurrence and some of them cause her to leave school early. Over time her neck, hips, knees, and ankles develop chronic daily pain that interfere with her concentration and make it difficult to sleep. Two additional surgeries are required because the shoulder “falls out” after the first. Healing takes a lot longer than expected and when she returns to the game, she dislocates her shoulder.
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